Monday, October 25, 2010

Video: Friday Oct 1 - Difficulty Standing

We had been admitted to LPCH the previous day and they had run a number of tests and scans. Her brain and spinal MRI had come back normal, which at this point, was a HUGE relief given that the most logical explanation for the symptoms and the quickness of their onset was a brain or spinal tumor/mass/hemorrhage. However, we were naturally still concerned because her conditions were continuing to deteriorate. One team felt that this was caused by a viral infection, whereas her pediatrician continued to cover all the bases by examining other (and more rare) potential illnesses.

On the previous day (Thursday Sep 30) when we were admitted, Keira was very clumsy and having issues walking and balancing. She was exhibiting hand and arm tremors as well.

On Friday morning now, she was having difficulty even standing and her hand/arm tremors seemed to have progressed into general body shakiness. Also Keira's mood and attitude were also being affected now.

I took this video so that I could show her doctors her shakiness when sitting, her difficulty standing, and generally shakiness and malaise.

This was about 3 hours before they told us that they had found a mass in Keira's adrenal gland and their diagnosis was that of Neuroblastoma + OMA.