Saturday, June 30, 2012

Mother's Day/Father's Day

We are so blessed to be at such a wonderful preschool. Little Stompers has been the perfect transition for Keira when she had to leave Emy's house so suddenly. We adore Mrs. Louise and applaud her energy and patience.

 Here are the songs that the children learned for Mother's Day/Father's Day this year. I wasn't able to get a good view of K during the song but I could definitely hear her!

 Keira knew all the words to the Father's Day song. Sadly, her enthusiasm caused her to speed up the tempo a bit too much. We will have to work on that!

Pizza Picnic at the Park!

Naveen has been working long hours since we got back from IL and hasn't seen much of his girls. Keira and I came up with a fun idea for our Friday night... a pizza picnic at the park!

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Dad with his girls.. Akemi seems more interested in the paper plate than having her picture taken.
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Love that smile!  Small is beautiful.  :)
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Akemi is still working on that plate!
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Now she's moved on to her foot.  
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Keira swinging in style!
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Happy Friday!
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Friday, June 29, 2012

Update

As most of you know our life has been a bit crazy since my mom's brain aneurysm on June 9th.  Thankfully, she is stable and working very hard to make a full recovery.  We are so proud of her strength and determination to get well... reminds us of a certain little girl we know and we're glad that Keira has inherited some of these traits from her grandma!  :)

We had to put some of Keira's appointments on hold while we were dealing with my mom's stay in the ICU and now that she is stable we are back in CA for a couple of weeks.  Keira has actually been happy to play with all her LPCH friends.

We spent Tuesday morning at ophthalmology.  Unfortunately, you can not see signs of opsoclonus unless her eyes are actually dancing (and we've never seen this as a sign of OMS with K), but long term steroid use can cause glaucoma.  It was good to hear that Keira's eyes are healthy.  We will go back for another check-up in 6 months.


Keira and Brown Bear after our appointment.  K loved her new glasses 
and was proudly sporting her stickers (BB got a sticker for being a good listener too!)


Tuesday evening we had PT with Jackie.  We've been concerned that K's static balance is off again.  The girl never sits still and for the last 2 weeks has been chasing her 5 year old cousin Aiden all over the place.  ANYTHING Aiden does, Keira tries to do without hesitation.  In some ways it's great, but it is also stressful for us when she falls because it's hard to determine what is OMS and what is her just being an active, impulsive kiddos.  Jackie felt that Keira looked as good or better than her last visit just over a month ago so that was re-assuring for us to hear and is exactly why we like for someone else to look at her every few weeks.

Today K and I went up to LPCH for Clinic with Dr. Effinger.  When Dr. E came into the room Keira ran over to her and gave her the longest, sweetest hug.  It was like she was seeing her friend after a long time.  :)  We talked a lot about what we've been seeing with Keira in the last month.  There have definitely been some ebbs and flows with her sleep, behavior, motor skills and speech.  Most things have come and gone but we are feeling that something is a bit off with Keira's articulation.  We're due to start her next steroid wean, but are going to hold off for another few days until after we have our appointment with Speech.  I know that we are all hoping it's just a phase and that she's being silly and making lots of funny noises like her baby sister but you can never be too careful with OMS.  We have to take everything seriously since the repercussions are very serious.

Thanks for reading this novel and for sending happy thoughts to our little girl!


Saturday, June 23, 2012

Instagram Pics May - June
































Instagram Pics Through April


It's naturally much harder to carry around the bigger cameras when dealing with 2 kiddos.  So many of my pics since Akemi has been born have been on the iPhone/Instagram.  I just went through and exported some pics from January through April of 2012.  Hard to imagine how much changes in 4 months.  I'll try to get the May - June pics uploaded too when I get another free moment ;)