Saturday, November 16, 2013

Half Moon Bay - Negative Tide

We spent the afternoon in Half Moon Bay with some of our favorite friends.

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 It was quite the adventure filled with trekking through the sandy muck and sea grass to get a glimpse at some ocean creatures up close. We saw tiny crabs, sea anemones, clams, huge worms and sea stars.

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What a fun day!  It's lucky we remembered to wear our boots!



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View photos in flickr

Wednesday, November 13, 2013

Akemi's ABCs

She's almost got it!

 Way to go Akemi. You can tell how proud of herself she is at the end of the song.

 So sweet.

 

Counting by 10s

Keira taught me a new way to count to 100 tonight... I just might have to teach it to my kids at school.

 

Monday, November 11, 2013

Keira Update

Keira (dressed as Rainbow Dash) and Dr. Effinger

This time of year is always filled with appointments for Keira.  Everyone wants to "check in" with her around the yearly anniversary of her OMS diagnosis.  With PAA and our trip to Chicago we've been playing catch up.  The good news is that K continues to amaze us all.  During our monthly visit to see Dr. Effinger it was decided that Keira would NOT take any pills during her regular 28-day pulse.  This is the first time in THREE YEARS that Keira has not taken additional steroids.  While we are overjoyed with her progress we tread lightly.  We will be watching her behavior and motor movements closely so that if there are any signs, however subtle, we can talk to her doctors and make the right adjustments so that Keira does not have a relapse.  

Keira will go back to LPCH on Wednesday morning for an ultrasound of her abdomen.  Prayers and positive thoughts are appreciated as always.  We've come so far since 2010, thank you for all the love and support.