Keira (dressed as Rainbow Dash) and Dr. Effinger
This time of year is always filled with appointments for Keira. Everyone wants to "check in" with her around the yearly anniversary of her OMS diagnosis. With PAA and our trip to Chicago we've been playing catch up. The good news is that K continues to amaze us all. During our monthly visit to see Dr. Effinger it was decided that Keira would NOT take any pills during her regular 28-day pulse. This is the first time in THREE YEARS that Keira has not taken additional steroids. While we are overjoyed with her progress we tread lightly. We will be watching her behavior and motor movements closely so that if there are any signs, however subtle, we can talk to her doctors and make the right adjustments so that Keira does not have a relapse.
Keira will go back to LPCH on Wednesday morning for an ultrasound of her abdomen. Prayers and positive thoughts are appreciated as always. We've come so far since 2010, thank you for all the love and support.