6th Treatment

We spent March 8th at LPCH for Keira's 6th Treatment. Showing up dressed in green, with our lucky shamrock socks on, we impressed all our nurses. As much as possible, we really try to make these long days fun for Keira, and being a teacher I have a lot of silly tshirts and socks for the holidays. Luckily, I also have a very supportive husband who will do just about anything to make his daughter smile. :)


Family Foot Photo

The day was super long but we made the best of it. We had a pretty steady stream of visitors who kept us well fed and entertained. The good news is that this was the last treatment where K will be receiving Cytoxin. This will help to shorten the remaining treatment days by a few hours. IVIg itself is still a very long process but we won't have the four hours of chemo and hydration after it anymore. Yay!

Also, as I mentioned in my last post, we are going to attempt to wean steroids again. Dr. Twist and Dr. Effinger agreed that it would be best to reduce her evening dose by half every other day. We will monitor her for two weeks and if things are still OK we will also reduce her morning dose by half on that second day.


Keira and Dr. Effinger

The goal will be to try to get K to an every other day steroid dosage. Being on an oral steroid for an extended period of time has many negative side effects to her little body and if we can at least give her a break on those off days it should help.


Our lucky little shamrock!

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