We had a fun evening of carving pumpkins with the Del Vecchios!
The girls spent some coming up with their jack-o-lantern concept
while the guys took care of the guts!
Akemi was happy to help with the sweets
which were enjoyed by all the kiddos
Happy Halloween!
Play slideshow - 25
View photos in flickr
Friday, October 30, 2015
Tuesday, October 27, 2015
Halloween Parade - Portal
It's fun having Keira at Portal this year.
She's been to the Halloween Parade before but this time she's part of the Little Blue Village!
She was happy to get a quick picture with some of her teachers
and her principal, Mrs. Rowe
The staff theme was Kimochis... our focus this year is all about FEELINGS!
How could anyone be cranky with such a cute butterfly?!
Of course we also had to get a picture with her buddy Grayson.
Check out that cool costume that he made by himself!
Play slideshow - 14
View photos in flickr
She's been to the Halloween Parade before but this time she's part of the Little Blue Village!
She was happy to get a quick picture with some of her teachers
and her principal, Mrs. Rowe
The staff theme was Kimochis... our focus this year is all about FEELINGS!
How could anyone be cranky with such a cute butterfly?!
Of course we also had to get a picture with her buddy Grayson.
Check out that cool costume that he made by himself!
Play slideshow - 14
View photos in flickr
Sunday, October 25, 2015
Pumpkin Patch - Webb Ranch
The best part of the pumpkin patch... riding the horses of course!
Keira went for a ride on Travis and Akemi's horse was Wink.
The dads took the kids on the train
and the moms found a few pumpkins to take home
Play slideshow - 31 View photos in flickr
Keira went for a ride on Travis and Akemi's horse was Wink.
The dads took the kids on the train
and the moms found a few pumpkins to take home
Play slideshow - 31 View photos in flickr
Monday, October 19, 2015
Last visit with Dr. E
Saying good-bye is never easy.
Dr. Effinger has been a big part of our family for the last five years... today was our last clinic visit with her at LPCH.
The girls wanted to make her something that she could take with her so we painted mugs.
They also made her sweet cards.
Although we are happy for Dr. E's new adventure we are going to miss her A LOT!
The good news is there is no way we won't stay in touch... we have faith she will come back to the Bay Area someday or maybe we will see a random Dr. E sighing when we are in St. Louis someday. :)
Regardless, our family is forever grateful for the love and care she has provided for Keira.
Play slideshow - 8
View photos in flickr
Dr. Effinger has been a big part of our family for the last five years... today was our last clinic visit with her at LPCH.
The girls wanted to make her something that she could take with her so we painted mugs.
They also made her sweet cards.
Although we are happy for Dr. E's new adventure we are going to miss her A LOT!
The good news is there is no way we won't stay in touch... we have faith she will come back to the Bay Area someday or maybe we will see a random Dr. E sighing when we are in St. Louis someday. :)
Regardless, our family is forever grateful for the love and care she has provided for Keira.
Play slideshow - 8
View photos in flickr
Tuesday, October 13, 2015
Treatment Day #2
A week ago Naveen was riding up the coast with his PAA crew and today we're back at LPCH for Keira's next treatment.
It's always sobering to be back at the hospital with the hope that this will be her last treatment.
We spent the day together building and playing legos... and when we were done she didn't want to leave because she was having so much fun.
Also, thanks Mrs. Norman for the visit and the sweet treats.
Keira is lucky to have such loving teachers!
Play slideshow - 10
View photos in flickr
It's always sobering to be back at the hospital with the hope that this will be her last treatment.
We spent the day together building and playing legos... and when we were done she didn't want to leave because she was having so much fun.
Also, thanks Mrs. Norman for the visit and the sweet treats.
Keira is lucky to have such loving teachers!
Play slideshow - 10
View photos in flickr
Sunday, October 4, 2015
St. Louis Walk-in-the-Park
For the past few years Naveen's parents have organized a Walk-in-the-Park in St. Louis to help raise money for Pablove Across America. Each year the group has gotten bigger and it's become quite an event! We are blessed to have people who continue to support our efforts to fund research for OMS year after year. We know that it would be impossible to do this alone... thank you doesn't seem like enough but it's all we can say... thank you St. Louis!
Saturday, October 3, 2015
Ups and Downs, PAA Around The Corner...
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Friday, October 2, 2015
Treatment Day #1 - the power of "luv"
Keira is the poster child for someone who knows how to put her brave in front of her scared.
I suppose she's been in practice pretty much her entire life, however, I truly believe that the love and support of her community makes a difference. It's always less scary when you know you are not alone. The outpouring of happy thoughts, prayers, and good wishes go a long way to making all of this "bear"able.
Keira, Brown Bear and Dr. E
Only 1 poke to get the IV in this time - yay!
Grandma and Keira are twins! They both picked out blue today... one of K's favorite colors.
Time for an afternoon nap... I think both K and BB are exhausted.
Soraya baked Keira some delicious chocolate chip muffins and drew her this beautiful picture.
Made our morning before check-in a happy one.
Grayson stopped by on his way to school to deliver this sweet note and drop off a bag of snacks to help get Keira through the long day.
Izzy stopped by last night to give K a hug and wish her luck. She also designed this super hero inspired by K... be sure to notice her super power... the power of luv!
A special thank you to Mrs. Gates and the Little Blue Village for the beautiful poster. Keira was happy to see her teacher at LPCH when she woke up from her nap.
Play slideshow - 17
View photos in flickr
I suppose she's been in practice pretty much her entire life, however, I truly believe that the love and support of her community makes a difference. It's always less scary when you know you are not alone. The outpouring of happy thoughts, prayers, and good wishes go a long way to making all of this "bear"able.
Keira, Brown Bear and Dr. E
Only 1 poke to get the IV in this time - yay!
Grandma and Keira are twins! They both picked out blue today... one of K's favorite colors.
Daddy flew in from Boston and found cupcakes at the airport. Yummy!
Time for an afternoon nap... I think both K and BB are exhausted.
Soraya baked Keira some delicious chocolate chip muffins and drew her this beautiful picture.
Made our morning before check-in a happy one.
Grayson stopped by on his way to school to deliver this sweet note and drop off a bag of snacks to help get Keira through the long day.
Izzy stopped by last night to give K a hug and wish her luck. She also designed this super hero inspired by K... be sure to notice her super power... the power of luv!
A special thank you to Mrs. Gates and the Little Blue Village for the beautiful poster. Keira was happy to see her teacher at LPCH when she woke up from her nap.
Play slideshow - 17
View photos in flickr
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