700 Miles In A Week!
This fall I’ll be riding my bike 700 miles from Austin to New Orleans with the Pablove Foundation to raise money for pediatric cancer research. As most of you know this ride is personal as 3+ years ago our 18-month old daughter Keira was diagnosed with an extremely rare cancer (Neuroblastoma) + autoimmune (OMS) diagnosis. She’s battled through cancer but continues to battle the OMS that came with it.
2/3 Young Cancer Survivors Face Secondary Disorders
In the last 20 years, only two new drugs have been developed childhood cancers and <4% of the National Cancer Institute's budget is directed to childhood cancer research. That’s for all kids cancers, and doesn’t even touch the myriad of secondary disorders and issues that 2/3 young cancer survivors deal with, OMS being just one of the rarest of these.OMS, The Disease You Never Heard Of
OMS is a neurological autoimmune disease that affects motor, cognitive, and behavioral development and was triggered by cancer. What’s miraculous about it though is that at it’s core, the body detected and mounted an immune response to cancer (which typically evades the immune system). The unfortunate side-effect was that it also triggered an autoimmune disease. But understanding this mechanism could not only help kids w/ OMS, but also shed light on how a broad array of cancers could be treated in the future.What We're Doing About It
There is virtually no research on the subject. However, last year, through your support we funded TWO seed grants specifically for OMS, virtually unheard of for a disease this rare. Which is why I continue to pedal away. With your help we can sustain and diversify our research, potentially unlock insights behind the immunity and cancer, and help kids within their lifetimes.
Thanks for reading, considering and if you do decide to support, please see the steps below (100% of donations go directly to research):
Step 1 - Donate http://stayclassy.org/
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• Click on the PINK donate button
• Choose to make your donation public or anonymous
If you're interested in learning more about our work, the research grants or the Pablove Foundation, click here for more info.
Thanks!