You brought some GOOD into the world.
It was over 3 years ago that we began an uncertain and uphill journey to fund research for OMS. This debilitating autoimmune disease was what Keira had to tackle after overcoming cancer. It remains one of the rarest diseases known, and afflicts only a handful of children a year.
Being diagnosed with such a rare disease makes you feel like you’re part of the forgotten few: no headlines, no celebrity endorsements, no drug companies funding research, constant uncertainty about flare-ups, cognitive issues, physical impairments, and struggles with insurance companies, schools, and counselors to get support. Family, friends and a small community of dedicated parents and doctors grinding it out every day looking for glimmers of light here and there as we help our kids.
Thanks to YOU, the glimmer of light is shining brighter :)
Thanks to YOU, the glimmer of light is shining brighter :)
This year we are happy to fund not one, but TWO OMS research grants!
2 years ago when Crystal and I first thought about OMS research, we had no playbook, we didn’t know how to fundraise, we didn’t know the first thing about research grants, and had no clue how we would get there or if we ever would.
Your contributions of time, money, encouragement, love and support, no matter how large or small, has made this happen. There is a part of you now connected to this milestone...thank you for being part of our journey, thank you for caring, and thank you for believing that something could be done.
For more information about the research research grants, see the links below:
- Award video announcing the OMS grants (video)
- Bethan Lang, MD, Oxford University, Detection of Novel Autoantibodies (pdf)
- Dr. Gregory Owens, University of Colorado, Targets of the Intrathecal B-Cell Response (pdf)
Crystal, Naveen, Keira, Akemi