I just wanted to give a quick update on Keira. Although the three days she was on the dex pulse were hard, Keira is already noticeably better. We were concerned that she was looking worse toward the end of last week. She was super unstable, falling A LOT and her hands were very shaky, not to mention her irritability. When you stop and think about all that is going on in her little body it's amazing she handles things as well as she does. We're so proud of her spirit and willingness to keep moving forward. The most she ever asks for is some extra chocolate milk. :)
Keira is suppose to go see her Physical Therapist tomorrow so it will be interesting to hear what Jackie thinks. I feel like Keira is just about back to normal with her gross motor skills. I can still notice a slight shakiness in her hands, but it is way better than before and I'm sure most people would not even notice it at all. The other crazy thing is that her speech seems so clear and articulate. I think the people at the Articulation Boot Camp think we're silly for sending her, but this is all good information to have documented. Maybe her speech will be an earlier indicator for an OMS flare and we won't have to let things progress into hand tremors and more severe ataxia.
Keira has also been such a great helper at home with Akemi while Naveen is out of town this week. She's cooperative, happy and has lots of energy.
We will continue to keep everyone updated on how she is doing... thanks for all the happy thoughts!