Ensure that health insurance companies cannot deny medical services to those who suffer from Orphan Diseases.
We are asking for the creation and passage of a new law stating that people who suffer from Orphan Diseases be allowed access to medical treatments, care, and medicines regardless of whether or not clinical/medical trials have been conducted for their disease. We are asking for a law that states that medical necessity be determined by an Orphan Disease patient's own doctor and not an insurance company. We are asking for a law that will reverse the health insurance companies' policy of automatic denial of medical services for Orphan Disease patients, therefore creating equal access to medical treatments, care, and medicines for all those who suffer from Orphan Diseases.
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